Today is the anniversary of the scientific breakthrough by Alec Jeffreys on DNA fingerprinting that led to the creation of the DNA database. And on Monday, the Royal Society hosted a discussion with Alec and Shami Chakrabarti (Director of Liberty) to discuss how we got here and where we might be heading. This is part of a welcome initiative by the Royal Society to bring together science and society.
Alec pointed out that DNA fingerprinting does not always tell us what we expect: for example, a percentage of Sri Lankan men tend to score as women. He also pointed out that low copy number analysis may be fine for investigating, there are problems with using it for prosecutions. Familial searching – where searches are conducted for someone related to someone else – may give rise to ethical and social issues.
But the main topic of conversation for the evening was the number of individual DNA records now held in the UK, which exceeds that of all other European countries put together: 73% of all Europeans on a DNA database are in the UK, with some 4.4 million profiles now held. This compares with around 500,000 in Germany and in France.
Numbers have risen since arrestees – not just those convicted – have been added to the database. Alec pointed out that there are now 800,000 people on the database who have never been convicted of a criminal offence. And Shami highlighted how the expansion had happened by stealth.
The database now holds data for example on all those who have been sectioned under the mental health act, and for many witnesses and children too, including a large proportion of all black children. Alec and Shami agreed that the current coverage was not proportionate or necessary so may well be in contravention of Article 8 of the European Convention on Human Rights. Matilda from Black Mental Health UK pointed out that sometimes people don’t even know they are on it, having been swabbed without being told what for. Diane Abbott MP described how in Hackney, amongst some youth groups, being on the database had almost become a rite of passage. Shami pointed to the massive commercial interests in these technologies, that encouraged government to constant expand. And Alec said there was no such thing as an infallible or free-of-error database; while it’s also perfectly possible for there to be correct matches that are accidental. And all were agreed that being on the database is not neutral, and can cause real distress, as it is not universal.
What is lacking is any mechanism for getting early-stage recognition of the potential social and ethical problems of any innovation, and any reasonable public discussion; with the media agenda always driven by whatever happened to be in the news yesterday.

{ 2 comments }
Louise like you i have very few comments on my blogs. You have far more to say than i!
Looks like you are staying close to William Heath. Alan Mitchell and Iain Henderson also work for Mydex.org. An org to watch.
Anyhows, I’m following you now on twitter.
Mike.
Hi Mike
William and I continue to work with Open Rights Group and support its work, although we’ve stepped down from chairing/vice-chairing the ORG board (a total of 8 person-years on that between the two of us). ORG board and ORG AC bring together folks with diverse opinions (ORG strength) but who share common concerns on citizens’ digital rights. I’m amazed at what’s been achieved in four years, and we only stepped down knowing the organisation was in capable hands. On to other projects…!
I’ll be interesting to see how the whole personal data agenda develops, but at least there’s a debate going on now, which there wasn’t when we founded ORG.
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